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Revista Colombiana de Reumatología
Print version ISSN 0121-8123
Abstract
GOMEZ RAMIREZ, Olga Janneth; OSPINA OLARTE, Jennyfer Yulieth; GERONIMO MALAVER, Jorge Eliécer and MEJIA FIQUE, Emily Catalina. My first years with lupus: A point of view from the experience of a young woman. Rev.Colomb.Reumatol. [online]. 2021, vol.28, n.4, pp.245-254. Epub Nov 20, 2022. ISSN 0121-8123.
Introduction:
Systemic lupus erythematosus (SLE) is a chronic autoimmune disease of a fluctuating nature and diverse symptomatology, which represents a high impact on physical health, psychological well-being, and social dynamics of those who suffer from it. In young people, the onset of chronic diseases interferes with the life project, so its confrontation is lived as a complex process, especially during the first years of diagnosis.
Objective:
Describe the life experience of a young woman with a recent diagnosis of SLE.
Materials and methods:
Research was developed with qualitative approach of a descriptive phenomenological type, following the fundamentals of Husserl and the methodology of Colaizzi. Five in-depth interviews were conducted between June and December 2019 to 5 young women with recent diagnosis of SLE (< 3 years).
Results:
268 significant statements and 22 nominal codes gave rise to the 4 categories describing the phenomenon: "my youth with lupus", "a reality that transforms itself", "living lupus through ties" and "in search of tranquility".
Conclusion:
The experience of the young woman with a recent diagnosis of SLE is influenced by internal and external factors, implies a complete modification in her life dynamics and, although it leads to multiple difficulties, it also represents gains and opportunities for her. The results of this study demonstrate the need for a comprehensive and humanized health approach, where attention to physical manifestations is accompanied by psychological care and social support.
Keywords : Women Young adult; Lupus erythematosus systemic; Life change events; Qualitative research.