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versión impresa ISSN 0121-4500
Resumen
BEDOYA, Alex Flórez y ARIAS VALENCIA, María Mercedes. Living with epilepsy: meanings constructed by people with the disease. av.enferm. [online]. 2017, vol.35, n.3, pp.255-265. ISSN 0121-4500. https://doi.org/10.15446/av.enferm.v35n3.62162.
Objective:
To reveal the meanings that people with epilepsy construct about disease and to describe the repercussions in several realms of their lives.
Methodology:
Grounded Theory tools with semi-structured interview technique were used, which was conducted with a total of 25 patients diagnosed with epilepsy, prior informed consent. Results were returned and validated with participants using a focus group and dissemination activities.
Results:
The following three categories emerged from the study: The person, The suffering, and The coping strategies. For patients, the suffering meant a drawback in several contexts. The person struggles to overcome suffering and to extricate it from his/ her life. Fear was a standing and cross-cutting emotion in disease sufferers. Cognition and rationalization were coping mechanisms that must take on a new meaning in order to go beyond the therapeutic adherence. These results can be applied in similar situations of chronic diseases, particularly, in the mental health field.
Conclusions:
People cope with the disease by means of reflection and cognition processes. This is expected to be considered as contribution for health services, social programs, people, and their families.
Palabras clave : Epilepsy; Chronic Disease; Nursing Care (source: DeCS, BIREME).