Resumen

MUNOZ GRASS, Luis Fernando  y  PALACIOS-ESPINOSA, Ximena. Quality of life and hemophilia: A literature review. CES Psicol [online]. 2015, vol.8, n.1, pp.169-191. ISSN 2011-3080.

Hemophilia is a chronic disease but medical advances have improved survival and quality of life among those who have developed it. The aim of this review is to present the current state of the literature on quality of life of people with hemophilia, produced between 2008 and 2012. It is found that the research has been focused on the physiological factors that adversely affect or protect the quality of life of these people; however, the evidence shows that it is also necessary to address the psychosocial factors. Specialized tools for assessing quality of life in hemophiliacs are few as well as empirical evaluation focuses on the operation rather than on the quality of life. Contrary to what happens in other countries, in Colombia there is no evidence of research on quality of life in patients with hemophilia and therefore the impact of this disease on the functionality and well-being of these patients is unknown.

Palabras clave : : Health Behavior; Hemophilia; Hemophilia A; Hemophilia B; Protector Factors; Protective Factors; Literature Review; Quality of life; Risk Factors; von Willebrand Diseases.

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