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Revista Colombiana de Reumatología

versão impressa ISSN 0121-8123

Resumo

SOLIS-CARTAS, Urbano; BASCO-FUENTES, Eduardo Lino  e  CALVOPINA-BEJARANO, Silvia Johana. Perception of quality of life in patients with Sjögren syndrome. 10 year study. Rev.Colomb.Reumatol. [online]. 2020, vol.27, suppl.2, pp.43-49.  Epub 03-Set-2021. ISSN 0121-8123.  https://doi.org/10.1016/j.rcreu.2020.03.004.

Introduction:

Sjögren's syndrome is an autoimmune, inflammatory, and chronic disease, characterised by the presence of pain, inflammation, and dry mucosa.

Objective:

To determine the perception of quality of life in patients with Sjögren's syndrome. Methodology: A descriptive and correlational study with a group of 457 patients diagnosed with Sjögren's syndrome. The sample consisted of 417 patients who completed the Coop/Wonca slide questionnaire to determine the perception of quality of life, as well as the Cuban version of the Health Assessment Questionnaire to determine functional capacity. Pearson's correlation coefficient was used to determine the association between the study variables. The sociodemographic characteristics of the investigated patients were described.

Results:

The mean age of the patients was 53.22 years, with the majority between 40 and 60 years (63.79%), of whom 88.25% were female, and with time with disease between 3 and 5 years (64.99%). There was a predominance of secondary Sjögren's syndrome (72.66%) with a predominance of the presence of patients with rheumatoid arthritis (49.43%). The overall quality of life perception score was 21.78, and the most affected dimensions were pain, social activities, and daily activities. A Pearson correlation value of 0.79 was observed between the presence of functional disability and the perception of HRQoL scores.

Conclusions:

There was a strong positive correlation between the presence of functional disability and health-related quality of life scores; the higher the disability scores, the worse the perception of quality of life of the patients.

Palavras-chave : Quality of life Sjögren's syndrome Coop/Wonca sheets Xerophthalmia Xerostomia.

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