Resumo

GOMEZ-GALINDO, Ana M; PENAS-FELIZZOLA, Olga L  e  PARRA-ESQUIVEL, Eliana I. Characterization and conditions of caregivers to people with severe disabilities in Bogotá. Rev. salud pública [online]. 2016, vol.18, n.3, pp.367-378. ISSN 0124-0064.  https://doi.org/10.15446/rsap.v18n3.53048.

Objective Describe socioeconomic characteristics, functions assumed, and perceived morbidity of a group of caregivers to people with severe disabilities in Bogotá. Materials and Methods Descriptive transversal study with a sample of 2 557 caregivers to people with severe disabilities in 19 locations in Bogota, selected under saturation of information criteria. The instrument, Characterization of Severely Disabled Individuals- Caregiver Chapter, was designed and subjected to content validity based on expert review. The pilot test was carried out subsequently. The validated and adjusted version was applied to the sample in the context of interdisciplinary home visits. Each participant signed an informed consent form and the complete confidentiality of the data supplied has been assured. Results The study found the influence of gender variables on the work of caregivers as well as economic insecurity, fragility of support networks, self-rated health disorders, high dedication in time to informal care activities, and the multiplicity of functions performed. Conclusions The wellness and health conditions of caregivers to people with severe disabilities show alterations that urge responses, not only in professional duties in the light of cultural recognition and the strengthening of this work, but also from the field of public action.

Palavras-chave : Disabled persons; uncompensated care; home nursing; long-term care.

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