Abstract

AYA-GOMEZ, Viviana Lucía  and  CORDOBA-ANDRADE, Leonor. Taking challenges together: Quality of life in young families with intellectual disability. rev.fac.med. [online]. 2013, vol.61, n.2, pp.80-90. ISSN 0120-0011.

In order to describe and understand the quality of life in 18 families of adolescent youth with intellectual disability in Bogotá, Colombia, it was realized a mixed study, through the Family Quality of Life Scale and semi-structured interviews, in order to build the Family Quality of life Map. The main findings showed that all the family quality of life factors were considered as strengths, except for the support for persons with disabilities factor. In relation to the study variables, significative differences were found. To conclude, the families of youth with intellectual disabilities enjoy their lives together, and have future life plans. However, their quality of life is affected by the overprotection of some relatives to the young person with intellectual disability, the lack of information about their rights, and the insufficient opportunities and supports of social inclusion that they currently have.

Keywords : Family; quality of life; intellectual disability; adolescent.

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