Abstract

RODRIGUEZ-GRANDE, ELIANA-ISABEL  and  ROJAS-REYES, MARÍA XIMENA. Quality of life assessment in people with intellectual disability. An ethical or methodological issue?. Acta Med Colomb [online]. 2022, vol.47, n.1, pp.31-35.  Epub May 06, 2022. ISSN 0120-2448.  https://doi.org/10.36104/amc.2022.2019.

Health-related quality of life is one of the outcomes proposed today for assessing the effectiveness of therapeutic interventions, especially in conditions with no medical cure and in which it is expected that the healthcare interventions will have an impact on the way people live. In the case of people with intellectual disability, there is controversy not only about the assessment of quality of life as an outcome, but also over the ethical and methodological considerations involved in its use. This paper addresses the ethical and methodological issues of including health-related quality of life as a clinical outcome in people with intellectual disability. (Acta Med Colomb 2022; 47. DOI:https://doi.org/10.36104/amc.2022.2019).

Keywords : intellectual disability; health-related quality of life; effectiveness; patient-centered outcomes.

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