Objective:

To describe the facilities and difficulties in promoting the right to health of children with Congenital Zika Virus Syndrome (CZS).

Materials and methods:

Qualitative study carried out in follow-up services for children with CZS in the city of Feira de Santana, Bahia, Brazil. Semi-structured interviews and systematic observation were used for data collection. Participants were gathered in three groups: Group I (seven caregivers of children with CZS), group II (six health and social services professionals), and Group III (eight health service managers). Thematic content analysis was used for data analysis.

Results:

Two empirical categories emerged in this research: Facilities for promoting the right to health, which includes the right to health as a legal assurance, the existence of committed professionals, access to information, prioritized access to health services, the availability of transportation, and the existence of a family support network; and Difficulties for promoting the right to health, which concerns a demand/search for services/consultations/exams that is greater than the supply, the time allocated to early stimulation activities and their frequency being lower than necessary, lack of a reference space for interprofessional care, unsatisfactory school inclusion, insufficient transportation supply, and barriers to the purchasing of wheelchairs, orthotics and prostheses.

Conclusions:

The description of the facilities and difficulties for promoting the right to health of children with CZS could contribute to the access to health services and practices, through an effective health policy to the reality presented, thus fostering a better quality of life for this population.

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