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Revista Colombiana de Reumatología
versión impresa ISSN 0121-8123
Resumen
FUENMAYOR CASTANO, Alexandra; JARAMILLO RESTREPO, Mauricio y SALINAS DURAN, Fabio. Quality of life in a population with haemophilia: A cross-sectional study from a single haemophilia treatment center. Rev.Colomb.Reumatol. [online]. 2017, vol.24, n.1, pp.18-24. ISSN 0121-8123. https://doi.org/10.1016/j.rcreu.2016.10.006.
Introduction:
In patients with haemophilia, quality of life can be affected by factors like arthropathy, age, and pain intensity.
Objective:
To evaluate the health-related quality of life in patients with haemophilia in Medellin during 2014.
Patients and methods:
An observational, descriptive, cross-sectional study was conducted on 60 patients with confirmed diagnosis of haemophilia. Demographic, clinical and lifestyle characteristics are described. Functional test were performed including measuring ran-ges of mobility and the six-minute walk test. The health-related quality of life (SF-36 and KIDSCREEN-27), disability (WHODAS II), pain (VAS), and depressive symptoms (PHQ-9) were also evaluated.
Results:
A total of 59 patients agreed to participate in the study. The mean age was 28 years (SD ± 14.8), with mild haemophilia in 5%, moderate haemophilia in 20.3%, and severe haemophilia in 74.5%. Almost all (96.6%) of the patients were under treatment with prophylaxis, and 84% of the patients were having physiotherapy. The main comorbidity was haemop-hilic arthropathy in 71% of cases, followed by dyslipidaemia (27%), overweight (20%), and smoking (11.8%). The six-minute walk test reported mean distance of 584.2 metres, and the SF-36 scores were similar to the general population.
Conclusion:
This group of patients with haemophilia reported a quality of life as high as the general population in Colombia without haemophilia. This finding reiterated the importance of the treatment with prophylaxis and the active participation of patients in a rehabilitation program, which promotes functional independence and a healthy lifestyle.
Palabras clave : Haemophilia; health-related quiality of life; arthropathy; physical activity.