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Revista Colombiana de Reumatología

versión impresa ISSN 0121-8123

Resumen

CAJAMARCA, Jairo et al. Sjögren’s syndrome and quality of life assessment. Rev.Colomb.Reumatol. [online]. 2020, vol.27, suppl.2, pp.140-151.  Epub 10-Sep-2021. ISSN 0121-8123.  https://doi.org/10.1016/j.rcreu.2020.06.011.

Introduction:

Sjögren’s syndrome (SS) is an autoimmune disease, with multisystemic invol- vement, particularly compromising the function of exocrine glands. The patients have a high burden of the disease associated with chronic fatigue, anxiety, depression, sexual dysfunction, among others.

Objective:

To describe the generalities of the main scales (specific and non-specific) for the evaluation of quality of life in patients with SS.

Methods:

A narrative review and expanded review was performed, including a search conducted in the different databases (PubMed, Embase, Cochrane, VHL) and grey literature. Articles related to the topic were selected and data extracted from them.

Results:

Three scales were developed specifically for patients with SS, and included Sjögren’s Syndrome Patient Reported Index, Psychometric Testing of the Primary Sjögren’s Syndrome Quality of Life Questionnaire, and Profile of Fatigue and Discomfort, and 14 scales performed in context of other diseases (non-specific) used in patients with SS.

Conclusions:

As is the case in other diseases, it is important to evaluate the quality of life in patients with SS. There are multiple scales for this evaluation, including the 3 scales mentioned before, specifically developed for these types of patients. The non-specific scales worth noting are, the Beck Depression Inventory and the Ocular Surface Disease Index, having their greatest use in the specific evaluation of symptoms associated with this disease.

Palabras clave : Sjögren syndrome; Autoimmune diseases; Quality of life.

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