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Persona y Bioética
versão impressa ISSN 0123-3122
Resumo
ENRIQUEZ-CANTO, Yordanis e OSIMANI, Barbara. IS GENETIC INFORMATION FAMILY PROPERTY? EXPANDING ON THE ARGUMENT OF CONFIDENTIALITY BREACH AND DUTY TO INFORM PERSONS AT RISK. pers.bioét. [online]. 2015, vol.19, n.1, pp.11-24. ISSN 0123-3122. https://doi.org/10.5294/PEBI.2015.19.1.2.
A current trend in bioethics considers genetic information as family property. This paper uses a logical approach to critically examine Matthew Liao's proposal on the familial nature of genetic information as grounds for the duty to share it with relatives and for breach of confidentiality by the geneticist. The authors expand on the topic by examining the relationship between the arguments of probability and the familial nature of genetic information, as well as the concept of harm in the context of genetic risk. Lastly, they examine the concept of harm in relation to the type of situations w the potential recipient of the information is not the person directly affected by the risk.
Palavras-chave : genetic information; familiarity; duty to inform; breach of confidentiality; privacy rights; genetic counseling; harm; genetic risk.