Resumo

ARIAS-ROJAS, Mauricio; CARRENO MORENO, Sonia  e  CHAPARRO DIAZ, Lorena. Uncertainty about Chronic Disease. Integrative Review. rev.latinoam.bioet. [online]. 2019, vol.19, n.1, pp.93-106. ISSN 1657-4702.  https://doi.org/10.18359/rlbi.3575.

This study aims to integrate the evidence about the uncertainty about the disease in the patient with chronic illness and their family caretaker, guided by the theory of uncertainty about the disease. For this, an integrative synthesis of the literature was carried out during the years 2007 to 2017. The Medline, Science Direct, Ovid Nursing, Scielo, Scopus, CINAHL and Psycinfo databases were used in the English and Spanish languages. To carry out the integrative synthesis, 46 publications were included, with 21 qualitative, 19 quantitative, 2 mixed and 4 reviews. The studies were mostly carried out in patients with cancer, neurodegenerative diseases, organic failures, heart failure, COPD and in palliative care of different diseases. Among the main conclusions of the study, it is suggested that the person with chronic illness and their family caretaker develop uncertainty about the chronic illness due to shortcomings in education about the disease and care, as well as the social support they receive from the health team and its support networks.

Palavras-chave : caretakers; chronic illness; nursery based on evidence; nursing ethics; uncertainty; decision making.

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