Abstract

GUSTIN, Clara; PIMENTEL, Willian; SARSUR, Marcelo  and  DADALTO, Luciana. Intervention bioethics as a social inclusion possibility for sickle cell anemia patients in times of COVID-19. rev.latinoam.bioet. [online]. 2020, vol.20, n.2, pp.41-53.  Epub Apr 23, 2021. ISSN 1657-4702.  https://doi.org/10.18359/rlbi.4703.

This paper discusses from the perspective of intervention bioethics the social exclusion experienced by Brazilian individuals suffering from sickle cell anemia. It is an inherited disease where the gene responsible for the hemoglobin differential format is generationally passed on. It has more incidence in the afro-descendant population than any other, given that this hemoglobin format alteration was an evolutionary response to prevent malaria in the African continent. Besides the social exclusion that this population suffers, there is an even greater degree of discrimination resulting from the disease's effects. It has been recently discovered that COVID-19 has worsened the difficulties faced by patients with this disease. Therefore, drafting intervention-bioethics-based public policies whose main focus relies on vulnerability and the persistent challenges of society is proposed as a possible action to reduce the consequences of patients suffering from sickle-cell anemia.

Keywords : Sickle-cell anemia; Social exclusion; Intervention Bioethics; COVID-19.

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