Abstract

OLIVEIRA, Stefanie Griebeler et al. Social Representations of In-Home Caregivers of Terminally Ill Patients: The Family Caregiver's Point of View. Aquichan [online]. 2016, vol.16, n.3, pp.359-369. ISSN 1657-5997.  https://doi.org/10.5294/aqui.2016.16.3.7.

Objective: To learn about the social representations of home care by family caregivers of terminally ill patients. Method: Qualitative study with eleven family caregivers of terminally ill patients, registered in the home care service of a teaching hospital in southern Brazil. The researchers conducted narrative interviews and used the content analysis method to analyze them. Four categories were established: male and female caregivers, a different perspective; role reversal and changes in care; experiences as a source of knowledge for home care; and healthcare challenges. Results: Representations by male caregivers differ from those of female caregivers because care also includes the context. Male caregivers do not associate distress to excessive burden but to the fear of losing someone. Other representations refer to the impossibility of choice to assume the role of caregiver and to role reversal, which causes patients to be submissive with the caregiver. Conclusion: The research revealed how family caregivers construct meanings and how they interpret the home care provided through the home care program. Particular attention is given to the role of healthcare professionals in guiding family caregivers.

Keywords : Home health care; caregivers; life changing events; nursing; oncology nursing.

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