Resumen

NINO-SERNA, Laura F. et al. Meanings of caring for children with cerebral palsy. Rev.latinoam.cienc.soc.niñez juv [online]. 2024, vol.22, n.1, pp.282-302.  Epub 10-Sep-2024. ISSN 1692-715X.  https://doi.org/10.11600/rlcsnj.22.1.6297.

There is insufficient evidence regarding meanings developed by caregivers of children with Cerebral Palsy in Colombia. The methodology involved adopting a hermeneutic approach, which was combined with the grounded theory method. A total of 13 semi-structured interviews were conducted with adult caregivers of children with cerebral palsy. Following an analysis of the results, four categories emerged: unconditional love; caring as a woman; experiencing grief; and the endless fight for their child’s rights. It was concluded that the caregivers of children with Cerebral Palsy have developed determined coping skills. This is because they are willing to give up their own lives, sacrifice their personal and social relationships, experience constant grief and learn new ways of caring and transforming their homes in their struggle to provide dignified care for their children. Unconditional love allows these caregivers to recognize themselves as unique caring women.

Palabras clave : Cerebral Palsy; child rearing; child development; children with disabilities; caregiver burden; child care; empathy; caregivers.

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