Introduction:

Amyotrophic lateral sclerosis (ALS) is the most common form of degenerative motor neuron disease in adulthood and is considered a terminal disease. For this reason, the actions of the speech therapist must consider respect for basic bioethical principles to guarantee adequate assistance.

Objective:

To know those bioethical considerations related to the management and study of people with ALS to then provide an approach to speech therapy.

Methodology:

A bibliographic search was carried out in the PubMed, Scopus, and SciELO databases. Articles published from 2000 to June 2023 were filtered and those that addressed a bioethical component in the population with ALS were selected.

Results:

Aspects related to the use of informed consent and shared decision-making stood out as essential elements to support people's autonomy.

Conclusion:

Proper communication and shared decision-making are key to respecting people's autonomy. In turn, the standardization of procedures through clinical research will contribute to compliance with the bioethical principles of beneficence and non-maleficence, essential for professional practice.

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